Picture: The experience of patients with cerebral infarction in the United States

Suddenly a sudden telephone ringtone was suddenly sounded on the night of September 9 last year. Boston’s brother Nancy called. Mr. Xiaojing, his cousin, had a sudden cerebral infarction after 5 years of treatment of multiple bone marrow tumors. Developed from the language to the right half paralysis, large, urinating incontinence, and cannot swallow. Only the transplantation of cerebrovascular stent can save life. As a chief physician of the surgeon, he gave a clear suggestion: do everything! The surgery was performed in neurosurgery at the famous BWH hospital (Bregen and Women’s Hospital) in Boston. The subsequent treatment and rehabilitation roads are very long. The social workers of the hospital talked with Nancy, telling her to have long -term ideological preparations and even made the worst forecast. When her daughter went to the ward to visit her dad, she lifted his right hand with a sense of consciousness and motivation, and asked: What happened to Dad?

Nancy is a dentist. He is connected to the axis in three places in the clinic, hospital and home every day. Although the daughter of two middle schools is sensible, she still needs to take care of it. Five years! However, this time, Xiao Jing fell completely, and she felt unprecedented pressure. Although another Ming cousin in Beika rushed to help the next day, Boston’s iron buddies also took turns to the hospital to accompany the visit, but after all, they were still at work. Xiaojing was hospitalized and the small family was in a unprecedented dilemma. My husband and I were over seventy years old, retired from domestic hospitals, to children’s homes in Toronto, and they were just idle. After discussing with the children, I decided to go to Boston to help.

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This is thirteen days after Xiaojing’s illness, we rushed to the Dangxuan of Boston, and Xiaojing he saw in the hospital, he was so weak and weak. The monitoring instrument chain is covered with the whole body, and it is difficult to control tumor indicators. The paralyzed right limbs, losing language, swallowing, and defecation control ability. I think of my brother in China. I have been hemorrhage for more than ten years. So far, the function of the right hand and feet has not been restored, and the quality of life has been greatly reduced. What will happen to his future life?

Due to the low immunity caused by the long -term chemotherapy of the tumor, a series of complications such as lung infection, gastric hemorrhage and severe anemia occur after the enopmentification of cerebral vascular stent in the small Beijing cerebral vascular stent and gastric fistula. Various rescue measures such as antibiotics and other rescue measures finally controlled the condition. The doctor decided to discharge all the stability for 24 hours and transfer to the rehabilitation hospital. We are quite worried about this: his body is so weak, can he consolidate for a few days before transferring to the hospital? Of course, as a doctor, we also understand that when you hand over your life to the doctor, you will obey the doctor’s treatment 100 %. cycle. Everything that happened afterwards proved this. Doctors must not only save their lives, but also save the quality of life. Rehabilitation training is a race of time, and it must not delay! On September 26th, 16 days after the onset, Xiaojing was transferred to Spaulting Rehability Hospital (Sippers Hospital of Massachusetts General Hospital), a famous North American rehabilitation hospital.

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This hospital was founded in 1971 and three years ago at the bay of Charles Town, northeast of Boston, to build fields and expanded the sea. The new hospital building has 8 floors, and the bottom floor is lobby and restaurants and shops. The second and third floors are rehabilitation training gym, language listening, cognitive ability training room, research room and human resources department. The 4th floor to the 8th floor is divided into disabled ward caused by various reasons, such as brain injury, spinal cord injury, cerebral obstruction, other nervous system diseases, comprehensive damage, and specialized ward of disabled children. There are thirty -two beds on each floor, which are single ward. Xiaojing is a patient with cerebral obstruction and lives on the fourth floor.

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The ward is wide and bright, and the large glass windows facing the bay make the scenery outside the window. I noticed that some wards are filled with books on the window sill, some are filled with flowers, and some of them can be placed in home photos. Household furnishings. Each ward is designed for the disabled, a large bathroom for the wheelchair, and a comfortable three -person sofa. It can become a bed at night for family members to sleep. The hospital provides free blankets, pillows, even snacks and drinks. Welcome The family members accompanied the patients to the patients and warmth, and life care was completely made by the hospital’s nurses and nurses. There are humanized management everywhere here. The first feeling is comfortable!

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The scenery outside the window is like this. Lying on the bed, you can see the small parks in front of the hospital and the ships and carboats in and out of the bay. You can also see the aircraft where the Boston Logan airport opposite the bay is up and down. Such conditions, as an ordinary patient Xiaojing, are lucky. According to his condition, there is just a bed position. It is transferred in. The bed fee of $ 2,300 per day and the costs incurred by other treatment are borne by the insurance company.

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In the first two days of transferring to the rehabilitation hospital, the hospital tested all the physical fitness of Xiaojing and formulated a detailed training plan: there are living skills training courses; physical physical training courses for physical physical physical physical physical training; Generally 3 to 4 lessons per day, 45 minutes per lesson. In fact, the BWH hospital under the transplantation of cerebral vascular stents began, but at that time, he could only let him try the right hand and right foot on the bed, even if it was only slightly moved, the initial ideas between the brain and the limbs interactive It has begun since then.

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The disabled people are most afraid that life cannot take care of themselves, and then lose the courage to continue life. The most basic concept of the recovery hospital brings to patients is: I want to stand on their own, I can stand on their own! Even if the right limb function has not been recovered, you must use your left hand to achieve your own self -care! Shortly after admission, the rehabilitation division guided Xiaojing to brush his teeth, wash your face, eat, dress, and toilet with his left hand. This is called a living skills training course.

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Teach him how to undress, dress, and wear socks with his left hand. All the training of all life skills is the training of will and concepts. The patient knows that he must improve himself at the beginning. Training is a process that constantly activate himself, discover himself, and achieve himself. Essence

The paralysis of the right lower limb has caused Xiaojing to lose the balance of standing throughout the body. The rehabilitation division with a high age is to ensure that Xiaojing stands safely, while holding him with his body, holding his belt with his hands, and every training action. They are soaked with the hard work of the rehabilitation master!

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At first, it was difficult to sit at the end. The body was always on the right side of hemiplegia, and the back of the waist could not be straight. Sitting balance.

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Seemingly simple movements, such as raising their arms, turning their wrists, and opening their fingers, Xiaojing needs to use the power of Yugong to move the mountain to repair the nerve channels of the brain to issue various instructions to the limbs. His proactive coordination is also a decisive factor.

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Training him with a paralyzed right -handed ball. When you see the exaggerated physical movement of the rehabilitation master, you know how he integrates himself and the patient, and use his own body language to cheer for Xiaojing!

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Get the rubber puree and put it into the hands of the rehabilitation division. Xiaojing, who has no consciousness and Zhang He’s ability, is a difficult hurdle! In addition to training him to hold his action, the rehabilitation division also trained his thumb and other 4 fingers to finger ability, which is an important part of restoring the function of the finger.

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How easy is it easy to move the small sandbag into the designated small barrel! This requires Xiao Jing to open Mu Na’s fingers to hold the sandbag, then move the arm, and accurately put into the small barrel. Not only does it exercise the mobility of the fingers and arm, but also forgate the space judgment of the brain.成功 A difficult success was praised by Dr. Rehabilitation!

Train the function of the right foot and right leg, hang the weak right foot with elastic straps, and let Xiaojing lift his legs to touch Kang Fu’s hand with your feet. While the teacher encouraged the height, the young man had been training.

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This kind of kneeling service is often seen. It seems to be a standardized service specification in this hospital. Doctors kneel on the ground and look up at the patient. Smile with a smile, and the wind and drizzle, the most thing to say is: good! awesome! no problem! Can you come again?

On the eighth day of the rehabilitation hospital, Xiaojing finally stood up and tried to walk on the ground for the first time! In the corridor, he helped the rod with his left hand, and a female rehabilitation division almost hugged his weak right leg, carried his paralyzed right arm, and helped him take the first step! Xiao Jing didn’t expect that his paralyzed legs could go down to practice, which undoubtedly brought him great confidence and surprise! We followed him excitedly, cheering and applauding every step he took!

Language Kangfu Shi took his hand to pass the language of love: I love you! In the language training class, he first taught him to learn to send the pronunciation, and then teach him the name of his and his family. Speaking is the most difficult time in all rehabilitation projects. The longest item, the longest may be two years, and even some people cannot fully recover. This was the doctor at the beginning. Mr. said to him again, it is really hard for him!

There are also music classes every week, rehabilitation division, volunteer and intern come to the ward to play guitar, sing a happy birthday song with Xiaojing. Sometimes they specifically choose Chinese girls to sing Chinese songs with him, such as selling dumplings. It is strange that his ability to speak has not been recovered, but it can be sung with dumplings!

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The rehabilitation fitness hall on the third floor has various training equipment, with power types and intelligent types; some dedicated to practicing the power of the lower limbs, and some dedicated to the power of the upper limbs; Simten to family stairs of different heights; children’s smart toys who exercise brainpower and fingers, are large and small, and are all available.

On the ground and pillars leading to the rehabilitation gym, you can see the slogan “Find Your Stringth” everywhere, which means: discover your power! Xiaojing is trained in the gym every day, where he can see the disabled people who are the same as themselves. There are old people who have white hair; there are middle -aged people who are in the same year; Give up for life, here to make people feel a powerful aura, the disability cannot be disabled, trying to change the future!

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There are photos of patients with disabilities standing up on the wall, so that a batch of disabled people sitting on a wheelchair every day through the wheelchair are firmly believed: that is me!

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Video of various sports such as swimming, rowing and skiing in the corridor to play a variety of sports such as swimming, rowing and skiing. It tells patients that you can not only stand up again, but you can also have a colorful life!

The first time I went to the gym to train and walk, it is also accompanied by two rehabilitation divisions, but the atmosphere of feelings is different. You can see your shadow from the people around you. Every day, every time, every moment of miracles occur.

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Practice the big clip with your right hand, clip it up, and then take it down to exercise the ability of your thumb and index finger. At the same time, it also seems to be simple to achieve the activity of the arm.

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After training with large leather balls, clips, barbells and other appliances, training with a right -handed toy with a right hand. After most of the arm function is restored, the function of the fingers recovered to accurate levels. Insert it according to the shape, both exercise your finger function and the brain.

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When he was first entered the hospital, Xiaojing could not eat. He could only use the nutrient solution from the gastric tube. The rehabilitation division used a cotton swab with lemonade to stimulate the mucous membrane of the mouth of the mouth to make him a small amount of water. Xiaojing can already swallow soft foods that are easy to digest, such as eggs, potatoes, mud, yogurt, ice cream, cake and other foods. Every day, the nutritionist calculates how much calories he eats, and then supplement the corresponding nutrient solution from the gastric tube. Swallow assessment every week, adjust the diet structure, and gradually increase the varieties of meat, fish, etc., until normal eating. In addition, because Xiaojing’s primary occurrence of multiple osteoma is complicated by anemia, the tumor hospital chemotherapy at the same time, while giving him blood almost every three weeks, all this greatly supports Xiaojing’s nutrition and physical strength. This It is an important guarantee for his ability to adhere to rehabilitation training.

This is a memorable day. One month after the transfer to the hospital on October 26th, Xiao Jing lost the battlefield assistant and took the footsteps. Under the protection of the rehabilitation division, he walked in the gym for the first time! The pictures on the wall have become a fact now! Confidence and hope are constantly growing: Come on, I can be better! When he could walk independently, the rehabilitation division trained him to walk horizontally, step back, walk around, and improve his balance. All training is recorded in the case, and the new training goals are set after evaluating his status every week. This is an integration of rehabilitation training, scientific research, and teaching in one of the rehabilitation hospitals, and scholars from all over the world often come to visit.

The trainer asked us to take a picture of Xiaojing’s living environment after returning home, and learned that Xiaojing’s home is a villa room, which means that when you go home, you must face the reality of climbing the stairs. Started training up and downstairs, everything was to return him to a normal life.

Did you see the infusion rack next to it? Even within a few days when the urinary tract is infected with intravenous intravenous injection antibiotics, the rehabilitation training has not stopped for a few days to rescue the BGH Hospital. Xiaojing is sometimes very tired. We also feel distressed. There is no interruption. In the first two months after the cerebral infarction, all the training has more effort. Only with unremitting persistence can there be a miracle!

There are various equipment that exercise upper and lower limbs, and gradually increases resistance according to the patient’s situation. Xiaojing’s limb function was restored mostly. During the training process, the rehabilitation division often asked Xiaojing: Are you tired? Do I need to rest? If Xiaojing is exhausted, the rehabilitation division will let him rest and measure blood pressure for him.

Most families in North American countries like to raise dogs. Volunteers in hospitals are caring for pet dogs to the ward every week. If you like dogs, this will bring you warmth and surprise.

During the rehabilitation period, Xiaojing had a secondary severe urinary tract infection, cold tremor, high fever, and even blood pressure decreased. The emergency rotary Boson General Hospital (BGH) rescue, which was a photo of his return to the rehabilitation hospital again. We do n’t understand the ureter to Xiaojing repeatedly every day. Why do n’t we repeat the intubation for retaining the ureteral tube? Daily B -ultrasound bladder measures urine volume. More than 700 ml can not urinate by itself to intercept the ureter. However, we later understood the intention of the hospital. This is the best way to train patients to restore control. 700cc’s urinary retention will affect kidney function, so you must guide the urine. Before this, the bladder filling will stimulate the patient to restore the sense of defecation and function as soon as possible. , Retaining the ureteral tube obviously caused the bladder to lose this training opportunity. It seems that during the early training period of paralyzed patients, all excessive care and help are superfluous and harmful!

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The chemotherapy of the tumor hospital once a week is connected to the disabled car to pick up and drop off, and the family members can accompany the car. There are automatic lifting systems on the bus. The driver put down the patient’s wheelchair, pushed the elevator port of the hospital to the family members, and informed that the nurse could call them to notify them to pick up after the end of the chemotherapy. Chemotherapy is generally six or seven hours. During this time, elderly volunteers are free to send snacks and drinks for free. Humanized services have moved us everywhere!

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This is the old grandfather who is over eighty, and Zhou Zhou accompanies Xiaojing to see him when he goes to the oncology hospital for chemotherapy. At noon, he will push two cars and send them for free for each patient and family members of chemotherapy. Dim Simson and drink, seeing we only took two cans of yogurt, he would put two packets of biscuits and small bread, and introduced that there were swallowing fish in the bread, which was delicious. Looking at the back of the grandpa, a kind of admiration from the bottom of my heart spawned! Compared to him, we are younger. Although we take the subway and transportation vehicles for more than three hours a day, cross Boston, run between home and hospitals, but what is this? With the ability and the opportunity to help others, like this grandfather, isn’t it the biggest happiness in old age?

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Two months of illness, the hair is also long, there is a barber room in the hospital, but the gentleman wants to do it for Xiao Jing. On this day, he brought the tools from home, and he was facing Xiao Jingli in the ward. He picked up a haircut with his hand with a surgery knife and said with a smile. Daily companionship, daily encouragement and cheering, and testimony every day make us intimate, maybe this kind of family, friends, and relatives continue to care for Xiaojing’s brain to get richer and beneficial environmental stimuli, which prompted him The recovery of the function is almost surprised at Xiaojing in the rehabilitation hospital, and there is a miracle every day!

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Can you imagine Xiao Jing, who was paralyzed in bed two months ago, Xiaojing rescued several times? After the haircut, he was glowing! Each of the care from his wife, daughter, and relatives and friends at home and abroad, the rehabilitation miracle that happened every day made him hope! Since the illness, although the process of treating tumors has suffered pain and rehabilitation training is extremely difficult, he always smiles with a smile, never frown, never calls hard, and obeys the arrangements of doctors and rehabilitation divisions. Whenever Zhang Jian, Shaowu and other iron buddies come to see him chatting, whenever we talk to him about the fun of children and relatives and friends, a hearty laughter will be heard in the ward. How can a Chinese who are seriously ill, how can he be so happy? I think this mentality is also an important condition for his ultimate miracle!

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Due to the special condition, the rescue of the transfer of the hospital twice, and the chemotherapy of the week, making Xiaojing’s hospitalization longer than the average person. Two months later, they transferred to the next level rehabilitation branch to consolidate the effect. This 65 -year -old Spanish caregiver After taking care of Xiaojing for two months like a mother, she wiped her body, bath, toilet, and even changing diapers. I hugged and farewell one by one, and I couldn’t help but kiss on Xiaojing’s face!

After another month of training, Xiaojing finally returned to the long -lasting home on January 4 this year. Except for not recovering, other walking, eating, urination, and even bathing can be taken care of. Even so, the hospital has arranged the rehabilitation division twice a week to train cognitive thinking ability and physical fitness and flat ability, such as up and down stairs, walking flowers, standing balancers, card recognition cards and playing cards. Someone came to check the living environment of Xiaojing, put forward improvements in the safety facilities of the bathroom, and also arranged for a bathing male caregiver every Tuesday to ensure that he was safe. All of these measures made him from a disabled person to a normal person to live a stable life, and of course the costs incurred were borne by the insurance company.

Back to the home who had farewell for more than three months, he felt so kind to everything. Here is where he paid all his efforts. Huh, “The science and engineering man is back again! The precision instrument has been repaired by the doctor!”

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A chair screw in the restaurant was nailed, and he often shaken. Xiaojing had liked to do some carpenter work. No, he even picked up the hammer and screwdriver to try to repair the shaking chair!

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Can you understand this photo? For more than three months of rehabilitation training, Xiaojing not only could walk, but also jumped three steps and four steps with his wife, which brought a huge surprise to the family! The younger daughter was holding a replenishment package for him because of the need for tumor treatment. He lost seven or eight hours of salt water every day (placed in the next night when sleeping) to dilute the cancer protein in the blood to prevent Cerebral infarction again. Even such days, the smile has not disappeared from Nancy and Xiaojing’s face. How optimistic, strong and loving this is!

Around Christmas, North Carolina’s cousins, Japanese brothers and children in Toronto took turns to accompany and visit Xiaojing. Nancy also established a small Beijing relatives and friends on the Internet. Xiaojing is unfortunate, but he can get so many people’s care and help, but also lucky. Fortunately, he participated in the Boston BWH and BGH General Hospital of Boston, Dana Faber Cancer Hospital, who participated in and rescued him. And the rehabilitation hospital is a top -level hospital in the United States. Dr. Paul Rechardson, a tumor doctor, is one of the two well -known experts in the United States for the treatment of multiple osteoma. One day at 9:30, the doctor called Nancy himself because of the blood test report of Xiaojing and found that the blood potassium was low. He specially cared for the need to increase the oral dose of potassium, which was changed from three times a day. NANCI told me that this was not the first time I called her. Dr.Rechardson and Nancy exchanged phone numbers and email addresses. If you have any things, you can contact each other at any time. Is this doctor -patient relationship considered a highlight of American medical care? Intersection

Xiaojing has four friends of the iron buddies in Boston: Zhang Jian, Shaowu, Zhaowu, Songping, and their wives. They have already forged a brothers who have been in trouble and the Communist Party in the United States for more than 20 years. For many years of illness, whenever they are in critical condition, they always come forward. After this cerebral infarction paralysis, they are even more helpful, especially Zhang Jian and Shaowu visited several times a week. Paper and pen discuss professional issues. Xiaojing’s cognitive and memories are constantly repaired. Zhang Jian even said: Peter (English name of Xiaojing) has never been broken. It’s come to solve! Four months in Boston, we were always moved by this family that is not a brother who is not a brother.

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On January 26, we will leave Boston the day before the U.S. visa expires. At this time, Xiaojing had been sentenced to two people. It was the exquisite medical skills, family, relatives, friends, and friends of Dr. Boston’s exquisite medical skills, family, relatives and friends, and friends, and Xiao Jing’s good mentality created a miracle! This miracle exceeds everyone, including the doctor’s expectations and imagination! The rehabilitation training of cerebral infarction comes to an end, but the training of cognitive speaking ability continues, and the treatment of multiple osteoma is still continuing. Dial a huge amount, Boston DANA Cancer Hospital and Dr.Chardson are also one of the leaders of the new project. Next year, new drugs are expected to be listed, Xiaojing insists, Xiaojing cheer!

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Four months of companionship finally farewell, we have to say goodbye to Nancy and Xiaojing, say goodbye to the two cute daughters of their two, and the old father of Nancy who came from Shanghai to pick up our class, and the four pairs of Boston with the same hands and feet. Couples of the iron buddies say goodbye! Unexpectedly, four months of companionship witnessed a miracle, formed an unforgettable sentiment, and at the same time, I also realized the superb medical level and concept of Boston, that is, life is precious and equal to everyone, and the rescuers must be absolute Do not give up so easily! Not only do people live, but also live quality! As long as there is a goal, there will be a miracle! In Boston, with the treatment of Xiaojing, we ran to BWH, BGH, DANA Cancer Hospital and Spault Rehabilities Hospital, that is, several famous American hospitals in the rehabilitation hospital. Yes: The patients there are really God, and doctors, nurses and nurses are really angels!

Author | He Zhongmin